Join this panel discussion to hear experts from patient advocacy, health literacy, and Health Economics and Outcomes Research (HEOR).

There is a deepening recognition of the value of engaging patients, their caregivers, and their advocacy organizations as partners to promote an understanding of burden and patient need, and thereby inform evidence generation and value argumentation. Whilst patients are becoming more attuned to data, evidence, and outcomes, the scientific and technical world of HEOR can be awash in acronyms and jargon. To engage with patient communities and invite them to be increasingly involved in HEOR activities, Pharma must make it more accessible to them.

Key Topics Include:

  • The challenge for patient communities in becoming involved in the HEOR process
  • How best to facilitate engagement of patient communities in the HEOR process
  • How can we ensure that data collection is meaningful to patients and therefore truly reflects the potential value new innovation provides?
  • How can we improve health literacy and the understandability of the HEOR process to enable effective partnerships and to assist patients to participate in shared decision making with their physicians?


Danielle Drachmann, MA
Executive Director
Patient Advocacy
Ketotic Hypoglycemia International

Josie Godfrey, MA
Strategic Consulting in Policy, Public Affairs, and Market Access
JG Zebra Consulting

Kristine Sørensen, PhD
Healthcare Consultancy
Global Health Literacy Academy

Beth Lesher, PharmD, BCPS
Senior Director
Strategic Market Access
OPEN Health

Kelly McCarrier, PhD
Director and Qualitative Research Lead
Patient-Centered Outcomes
OPEN Health

Gavin Jones, BSc
Global Advisor
Rare Diseases
OPEN Health


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OPEN Health

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