NPC Comments on NQF’s Draft Report on Patient-reported Outcomes (PROs)

August 8, 2020

The National Quality Forum (NQF) released a draft report on June 1, 2020 entitled “Patient-Reported Outcomes: Best Practices on Selection and Data Collection”.  The National Pharmaceutical Council (NPC) submitted comments to NQF on the draft report, as follows:

  • Applauding the emphasis on patient engagement and recommending the inclusion of caregivers during measure selection and implementation
  • Using more inclusive terminology: “patient-reported measures” (PRMs) and “patient-reported performance measures” (PR-PMs)
  • Adding domains to capture socioeconomic status and multiple facets of the patient experience
  • Supporting the inclusion of the attribute grid with suggestions to expand and clarify
  • Supporting implementation recommendations with additional discussion of funding

NPC has a long history of conducting research in patient-reported outcomes in oncology, working in partnership with Discern Health, and this partnership has released a 2019 white paper: Improving Patient-reported Measures in Oncology.

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