AHRQ’s Registries User Guide Gets A New Edition

September 24, 2020

Today the U.S. Agency for Healthcare Research and Quality (AHRQ) released an updated version of “Registries for Evaluating Patient Outcomes: A User’s Guide: 4th Edition.” First published in 2007, the User’s Guide is one of the premier texts on patient registries.

The 4th edition of the User’s Guide was produced by OM1 and led by Michelle Leavy, head of Healthcare Research & Policy. The 4th edition supersedes previous versions and contains the following features:

  • Fourteen chapters focusing on the fundamentals of registry planning, design, operations, analysis, and evaluation
  • Considers the trend toward incorporating data from multiple sources into registries
  • Provides updated content across all chapters to reflect the issues related to use of different data sources
  • Addresses the revised Common Rule and its implications for registries
  • Includes two new chapters – one on the selection and definition of outcomes for patient registries and one on registry governance
  • Incorporates content from earlier eBooks on developing patient-centered registries, engaging patients in registry development and operations, and incorporating new tools to support interoperability and exchange of data with other sources

“Registries are one of the key sources for real-world data and evidence to meet a variety of needs for multiple stakeholders,” said Leavy. “This new edition provides practical information to support the development and management of high-quality registries and related sources of real-world data.” Read more about the release here.

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